I feel like I’m a statistic: 12 years of seeing different specialists, misdiagnosis, ill-informed specialists, being the 1 in 10.
The first time I saw a specialist about my periods I was 18. At that point I didn’t have a period. The solution was the pill.
After a break from the pill, my skin was terrible. The solution was the pill.
After coming off it again (thanks to coming across Nat Kringoudis’ amazing blog) I was misdiagnosed with PCOS, and IBS. I remember asking the gynaecologist if this why my periods were so painful and she said I “may have a touch of endo”. That’s it, she didn’t even explain what it was or tell me if there was any treatment. And I didn’t know what it was and just left it.
Then I saw a naturopath who told me, what I knew, that there was something causing this pain and that she thought I should see an endometriosis specialist.
I got a referral and have just had a laparoscopy, which confirms I have endometriosis. I had a gut feeling that something was wrong, but also worried that maybe I had the same pain that every woman deals with and that it was just that I couldn’t manage it (wrong!).
So what I want to say is:
– trust your instincts, we are the best judges of what is happening in our bodies
– don’t minimise what’s happening. How could I have thought it was normal to be woken up by pain? To be unable to move or think of anything else?
– don’t always trust everything your doctor tells you. Research yourself.
– and, finally. If you have period questions – Nat’s blog is brilliant!
Now that I know what is going on, I can finally start addressing it properly.